
Christian is our
Eleven-year-old son. He likes to sing, dance, and he loves to go to
Birthday parties.You would think he's just another
normal eleven-year-old boy, he's not.
Christian has a rare genetic disorder called Hunters Syndrome or
This means he is missing an essential enzyme that breaks down a complex body
sugar.
This sugar is then slowly stored in all the cells of his body causing
devastating results.
As the Hunter Syndrome progresses it cripples Christians little body until he
won't be able
to walk, talk, or hear. The storage of the
resulting in mental retardation, dementia and eventually death. Our son has an
expected life span of
10 to 14 years. So now we're fighting for our son’s life. This foundation is
dedicated to
fighting for a cure for
There are a
handful of researchers working right now to find a cure for
They have come very close and we want to make sure they can continue.
It's critical that they have the funding they need to continue this work. It is
a matter of life and death for Christian and thousands of other children
suffering from various forms of this devastating disorder. We have started
The Christian Lon Foundation for
our foundation and finding out more about these beautiful children. You
could be their only chance at life. They fight everyday to live as
breaks their little bodies. Help us save our son and all these children.
Thank you for taking the time to learn about Christian's fight. Now it's
time to get to work and save these children's lives!
Thank you from the bottom of our hearts,
We would like to
gratefully acknowledge the many generous donations we have received.
The Foundation is dedicated to funding research and increasing awareness of
There have already been miraculous breakthroughs in Enzyme Replacement
Therapies in the past two years
because of donations like yours. Now there is hope where there was only
despair.
Lives are being saved. We deeply appreciate every donation we have received
God Bless each of you,
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