Dear Family and Friends

This movie is about to be released (I think you will see the release date is important!!). The movie is a true story about children with a rare genetic disorder... not much different from the one our son Christian suffers from (MPSII or Hunters Syndrome)...I was with these children with Pompeii disease at Children's Hospital they were with us in the clinic when Christian would get his treatments for MPS. The story is also very close to that of the Dr. Who developed the ERT (enzyme replacement therapy) for MPS II. Please watch and or go see the movie... and read about the contest on the website. The winner will receive $10,000. to give the charity of their choice... as you watch you will see the video by an MPS parent that was submitted for this contest. PLEASE, PLEASE VOTE for it.. vote everyday for it... send it to your family and friends and ask them to vote for it.. The video with the most votes will win the contest. This is a worthy cause you will be helping to save children like our son Christian... Thank you for responding.

EXTRAORDINARY MEASURES - Official Web Site

Much Love,
Maureen